In recognition of Breast Cancer Awareness, HealthLinks is launching a unique web series titled “Fearless” that features four South Carolina women who beat breast cancer and are now thriving in their own ways. Our hope is that the unique fortitude and resilience of these women help inspire others who face breast cancer and similar diagnosis.
Dear Fearless Women
November 5, 2021
Dear Fearless Women,
It has been 15 years since my diagnosis of breast cancer launched a journey no one enjoys taking. If I had penned a letter to myself soon after my experience, there are so many things I’d say. This letter is to me, to be tucked away with all the other mementos from my cancer years.
I also dedicate this letter to other women who will have to find their fearless when cancer calls.
When you find a lump or get an unexpected diagnosis after what should have been a routine screening, try not to panic. I didn’t panic, and I didn’t pretend that a lump wasn’t there and would go away. When the first fear hits, become fearless right away. Take a deep breath, call your doctor and get to the office soon – like the next day. You can’t know how to fight until you know what to fight.
Not knowing is the biggest fearmonger of all.
Every woman’s diagnosis is different. We know so much more now about breast cancer and its many nuances than in 2006. Just because one woman had a bad experience with treatment doesn’t mean you will. And treatment plans won’t look the same for everyone. A breast cancer diagnosis is not a death sentence if it’s discovered early.
Have someone go with you to the appointments, doctor visits and tests. You need your support system with you, but you also need another set of ears and eyes to hear and process what is being discussed. You think you will remember what was said, but the underlying emotion and apprehension will fog your brain. You need backup.
Let people help you. Accept the offer of meals prepared, errands run and kids watched. Don’t try to be Wonder Woman. You are in a major fight, and you need all your energy and positive thoughts focused on taking care of yourself. It is OK to let others help you. Women are programmed to be all things to everyone in the family. Let go and let them take care of you. It will only be for a season. I had to be knocked flat on my back to realize that I did not have to be all things to all people. Just let go.
Don’t go on the internet and start Googling your diagnosis and checking into all the chat rooms and forums that are out there. You will be confused, discouraged and scared. And remember – every woman’s diagnosis is different. Depend on the information you get from medical professionals. Know as much as you can about your disease and the treatment protocols, but rely on the information, resources and materials from your doctor and medical team.
Going through chemotherapy is no walk in the park, but you can make it better on yourself by letting your medical team advise you on the best foods and beverages to eat and drink. Try to keep active, walk and exercise – with your doctor’s permission, of course. And remember that your chemo nurses are the oncologists’ eyes and ears. If I had it to do over again, I wouldn’t try to keep all the side effects I was having from the Taxol infusions from my doctor, thinking that I had to complete the 12 rounds or I would die. Tell the doctor and nurses what you are experiencing. Side effects are no joke; I could have done some major damage to my body by not being upfront about what was happening.
If I had to do things differently, would it have been better to see the oncologist before opting for the mastectomy? I honestly do not know. It was the best decision for me at the time. I don’t think the treatment plan would have been any different. Today, many women do not have to experience a mastectomy to control their disease. For me, it was a peace of mind decision rather than a medical one. The routine mammogram did not find my tumor. I did not want to live with that uncertainty for the rest of my life. This decision has to be one made by the woman and her medical team.
When I could, I worked and did all my usual homemaker activities. Keep a sense of normalcy, but realize that when your body needs rest and says to stop – stop! I had good days but more bad ones. On the good days, I could do most things normally, but, on the bad days, I rested and slept, read and watched movies I’d never had time to watch before
Be an advocate for yourself and know your body. Know what feels right and what seems different. Ask questions. Be vigilant. Take care of your body. Stay on top of your yearly doctor visits. I was that person, and I knew immediately that something wasn’t right.
There is a still a small voice that speaks to us – open your ears and heart and listen.
Finally, join me and take a moment to say thank you to doctors, nurses, researchers, clinicians and anyone else who is working to find better treatments and a cure for cancer – especially breast cancer. I firmly believe that if some of the chemotherapy and immunotherapy regimens I was able to have had not been available, I would not be alive today. Consider donating to organizations that funnel as much money as possible into research and support of those experiencing cancer.
Soon after Thanksgiving Day, I will celebrate my 71st birthday. I remain thankful for the gift of remission. This year, I will hug Harry, my husband of 50-plus years, a little tighter. I’ll tell my sons, Jesse and Andrew, how proud I am to have sons who are educators.
To those who will be the future fearless: Keep listening to your body and your heart. Lean on your faith and all the families that life brings – church families, work families and family families.
Don’t let cancer be a lonely journey; there are so many people to lift you up when you feel down.
Blessings,
Cathy
Let Hope Permeate Your Journey
October 29, 2021
Not long after cancer patients receive their diagnosis, one question starts to cycle into many others: Will it return?
This was certainly one of many questions for Patricia Simon, the director of Trident Medical Center’s Inpatient Rehabilitation Unit, when she learned she had breast cancer 34 years ago. She was 33, and breast cancer had taken the life of her mother, Margaret, at the age of 42.
Simon’s cancer was detected at stage 1, and, because medical advances offered more hope for survival, she believed she could win the battle her mother lost. But “Will it return?” remained a question.
“Once you have cancer, even a sore thumb makes you think that cancer is returning,” Simon said. “I had more than 20 years of a nursing background in women’s health, but I still worried about recurrence.”
Unfortunately, for Simon, cancer came back.
Grateful to be in remission for six years now, she successfully fought breast cancer and uterine cancer, which doctors confirmed were totally unrelated.
Her advice to women who have to fight the cancer fight comes from her journey as a multiple cancer survivor. It echoes the advice of other survivors but with a little more emphasis on the power of hope and the joy of immense support from family members, whether by birth or through support groups.
“I’m a positive person to begin with, and I know that helped a great deal,” Simon said. “You have to push back the questions like ‘Will it return?’ and ‘Can I take this?’ with hope and positivity.”
Over half of breast cancer survivors experience moderate to severe levels of fear of cancer recurrence; this grows to up to 70% among younger breast cancer survivors, according to research conducted by New York University in 2021.
The NYU research backs Simon’s advice about the benefits of hope and a positive attitude.
Among the women who participated in the NYU studies, “a greater fear of cancer recurrence was associated with higher distress, anxiety, depression, lower quality of life and certain beliefs about their cancer, including worse perceived consequences and greater emotional response to illness.”
“Having hope is so important,” Simon said. “If I had a hard time finding it, my husband, Dennis, and my children, Scott and Christopher, brought it to me. They brought me hope and laughter.”
Simon fondly recalled one of her husband’s responses to the news about her breast cancer. As a Naval officer, he was deployed on a submarine at an undisclosed location and returned as quickly as possible.
“During a Reach to Recovery meeting, a counselor asked him if there was anything he was worried about,” Simon said. ‘“Not really. I’m a leg man,’ he joked. I always knew he was a leg man. In the moment, his response was perfect. We both laughed.”
Simon is quick to note that when family members are not available, cancer survivors are a family filled with members who are eager to offer emotional and practical support around the clock.
Specifically, Simon tipped her hat to the Susan G. Komen Foundation family; she worked for the Foundation for 20 years, five as its president, and she remains an ardent fan of the resources, events and funding available to anyone fighting cancer or thriving after cancer.
“It is so important to reach out and find someone you feel comfortable sharing your fears with,” Simon said. “The Foundation is one among many resources to connect with in order to create your support team and find answers.”
As a multiple cancer survivor, Simon confirmed the importance of finding the perfect balance between listening to the advice of doctors and listening to yourself.
Listening to her own body, to everything she knew as a nurse and her instincts, she moved swiftly when she discovered a lump on her breast.
“I coached T-ball, and the son of my OB/GYN, Dr. Jimmy Martin, was on the team,” Simon said. “During a Saturday practice, right after I found the lump, his wife noticed how tired I was. When she learned that I had been up all night worrying, I had an appointment that same day.”
Years later, Simon listened to her GYN oncologist, Dr. Ward Katsanis, and got tested for uterine cancer before the Christmas holiday rather than after.
“We were all shocked by the result,” Simon said. “After breast cancer, I got tested for the gene that indicates my cancer risk. (BRCA1/2 mutation screening). I didn’t have it.”
“Dr. (Steven D.) Shapiro told me not to get overconfident because there are so many other genes linked to cancer that are not picked up by that test,” Simon added. “He was right.”
In 1996, BRCA screening became the first genetic test for cancer risk.
In October 2011, long after Simon’s cancer, a genomic test that is used to predict the likelihood of cancer recurring in women with early-stage hormone receptor-positive breast cancer – Oncotype DX – became available.
Simon has opted not to have the Oncotype DX screening. Instead, she sees her oncologist, Dr. James Orcutt, a medical oncology and hematology specialist for screening once a year. She savors the relief that comes with the news that she is all clear.
“I always turn toward hope,” Simon said. “Everyone with cancer has to seek and then cling to hope.”
Cancer Carries Its Own To Do List (It’s Ok Not to Get It All Done)
October 22, 2021
As the founder and president of HHK Healthcare Marketing Specialists, Hunter Kerrison is no stranger to To Do lists, the challenges of balancing work and family life, and her own sources of peace.
HHK, a consulting firm specializing in strategic marketing services for healthcare-related organizations, launched in 2001. Kerrison’s entire professional life before that launch was rooted in translating the language, the complexities, emotions, and policies for hospitals and healthcare systems, Bon Secours-St. Francis Xavier Hospital, Trident Health System among them.
Yet, in 2017, at the heart-dropping moment when she learned she had breast cancer, she couldn’t translate the words. She was on the other side; suddenly she was a patient .
“I had a moment of panic. I froze and eventually thought, ‘What next?’” Kerrison said. “The excellent thing about being frozen is that it pushed me to turn to all the amazing doctors in my contact list.”
Kerrison is one of the few cancer survivors whose story is spared the punch line “until she had cancer.”
She kept running her company – a company that hit its 20th anniversary this year. She continued to enjoy family time with her daughters, Legare and Harmon, and her husband, Lea.
The priorities on her To Do list just shifted and expanded when cancer hijacked her body.
“I’ve loved working my whole life ,” Kerrison said. “With a full-time job and motherhood, there are plenty of times both looked messy. I already knew messy is ok at times.”
So when things got messy while balancing cancer, motherhood and work, she rode it out.
“Everything is harder, but it’s doable,” Kerrison said. “You have to be gentle and kind with yourself and lean on your village as much as you can. “
“Working kept my mind on something other than cancer,” she added. “I didn’t want to become breast cancer. It becomes a priority and you have to embrace it, but I didn’t want to become breast cancer.”
Full-time career, full-time mother who loves her family life, perhaps the best way to share the lessons, laughter and gratitude that fill Kerrison’s cancer journey is through a heart-warming To Do list.
Gleaned from conversations with Kerrison, the list for those who are battling cancer begins:
Cancer To Do List
Build Your Own Team
“Creating a care team of doctors and specialists is the very first hurdle,” Kerrison said. “Select the people who will really be there to support you, help you map out your treatment plan and your opportunities.
Cancer calls for “multi-layered decisions,” she added. “I have not met any two people whose treatment plan looks the same. The protocols are that varied. You need to customize your care team the same way.”
Tapping the wealth of experts that she knew, Kerrison created a team from a variety of specialists and surgeons rather than falling in line with specialists and surgeons from one health care system.
“I was not afraid to step outside of one singular network,” Kerrison explained. “I didn’t feel limits of using just MUSC, Roper and others. I did a hybrid approach to building my team, knowing that my heart is with the independent practitioners.”
Filled with immense, continued gratitude for her team, Kerrison interjects shout outs as she described it.
Accolades for Dr. Meghan Baker, a high risk breast cancer specialist in Mt. Pleasant, and Dr. Richard Kline Jr. who is with the medical team at East Cooper Plastic Surgery, are too numerous to count as Kerrison discussed her multi-disciplinary team. She also credited her oncologists, Dr. Julia Saylors and Dr. George Keogh [Charleston Oncology], for returning her to health and offering happiness along the way.
“I called my OB-GYN, Dr. Molly Joseph first,” Kerrison said. “As with most women, my OB-GYN is the gatekeeper to the rest of my health. Mine rose to the occasion and helped me pull together the rest of my team.”
Take advantage of the teams of survivors
“I have nothing but amazing things to say about my care team, but the minute you become an unfortunate card-carrying member of Breast Cancer Club, you have a world of support all around you,” said Kerrison. “In person, via calls, emails and social media paths, we field and ask the questions that keep you up at night.”
She remains grateful for the community and further describes it as “this amazing village of women who are all about paying it forward. It is worth availing yourself to the village when you become an inadvertent member of the club”
Let go of all expectations that you can be your best, mutli-tasking, caregiving self
“While I’m proud of continuing to be there for my clients, brain fog is a real thing,” Kerrison said. “I write television scripts, blogs, and web content and these are things that I was typically able to do in less than an hour.”
“With cancer’s brain fog, I would stare at blank pages for hours,” she added. “I remember thinking ‘this is how I’d feel if someone plunked piles of tax paperwork in front of me.’”
Kerrison had to recognize that she couldn’t do everything at once, and what she could do didn’t have to be perfect.
She spins a (now) hilarious tale about getting ready for a big event while feeling nauseous, and trying to find the outfit that covered her chemo port and other tubes. She was also wrestling with a wig for the first time.
“I didn’t want to distract people and a bald head does that,” Kerrison said. “I kept trying to get dressed. I had drains from a surgery and no hair- and I wanted to look professional.”
During the wig wrestle, Kerrison realized she was “violently allergic, humorously allergic” to the wig.
Wig on, sneeze. Wig off, no sneeze. Wig on, sneeze.
Ultimately, she realized that “a scarf would have to do.” Her daughter, Legare, had learned all kinds of cool things to do with a scarf, so the backup plan was ready, Kerrison said.
“So I learned to rock the bald head with scarves and hats,” she added. “You have to let go of all notions that anything can be neat and tidy. Doing your best has to be enough.”
Seek Your Individual Comfort
Throughout Kerrison’s journey, she discovered unique sources of comfort that she would cling to during her toughest times. Heads scarves become an early source of comfort.
Her daughters also made her a sock monkey and a sock elephant that accompanied her to treatments and surgeries. They made signs and flung them up as a welcome home from every treatment as well.
These comforts were two of several that “lit up the darkness in my journey,” she said.
Pick Up Healthy Diversions
Kerrison picked up new hobbies and interests while cancer redirected her life. She baked a lot with her daughter. Together, they also explored cancer fighting foods and their interest morphed into a blog they shared with a small group of people.
She saved every gift and card she received and then archived them in a creative gift ideas blog.
One of the very first question folks ask me is, ‘What should I do for my friend or family member,?’ and “What should I give them?’’
Someone pulled together Kerrison’s chemo bag for her, so now she creates one for close friends.
“Sometimes you write and wonder if your card matters, it does,” she said. “Everything you do and give matters.”
Kerrison is thankful for two years of remission from cancer. She considers the word fearless inseparable from every cancer journey.
“Whether you are immersed in family, your career, your own health, you have to walk the journey with a fearless mindset or you won’t feel alive while you have cancer.”
‘Anncredible’ Answers to Cancer
October 15, 2021
Ann Peart describes herself as a single mother – in love – a jack of all trades, a stage 4 cancer survivor and a natural health advocate. Her journey to these roles is a story of resilience, self-advocacy, endless hours of research, vulnerability and a social media push to gather and share as much information as possible.
In 2013, the first cancer entry of her well-researched, personal blog titled “Anncredible” released her private questions and fears to the world:
“I am tumbling, gasping for air and feel the full force of the shock. A million questions race through my mind. Could it have been diagnosed sooner? How long will I live? Will the children understand? How will I have enough energy to fight this when I barely make it through a day as it is? Am I strong enough? If I’m not strong enough, will I feel like I’ve failed my family?”
Peart was raising two children on her own at the time: Natalie, age 9, and Eliah, age 6, who is handicapped, wheelchair bound and was struggling mightily with seizures that sometimes required resuscitation. He was her day; parenting was her life.
Until she found a lump in her armpit.
“The cancer spread so rapidly – from a lump in my armpit, to a lump in my breast in weeks,” Peart explained. “For three weeks, while I was trying to see a doctor and get a diagnosis, two lumps went to eight, and then it spread into my bones. It was extremely fast and frightening.”
She remembers the initial ache of loneliness and isolation that accompanied cancer.
To fight that loneliness and to help her through chemotherapy and surgeries, friends and family members flew in on donated frequent flyer miles. Her ex-husband stepped in and helped with the children.
“Finances were one of the scariest things,” Peart said. “I worried about keeping my home and paying medical bills. Life doesn’t stop because you are going through cancer treatment.”
Friends started a Facebook group to rally help, and they were flooded with potential sources and resources. They checked out every tip, matched them to Peart’s needs and filled out mounds of paperwork for her.
Generosity flowed.
“SC help.org paid my mortgage for two years. The Susan G. Komen Foundation helped me qualify for Medicaid and paid for surgeries,” Peart said. “A lot of people don’t know about all the help that is available.”
Some of the first things people say when they find out you have cancer is, ‘I have a book,’ or ‘I have a supplement,’ or ‘I have a friend who passed away,’” Peart added. “People – kind people – offer lots of advice, but at first the advice is not helpful at all.”
“I kept thinking, ‘I’m dealing with my own mortality here. I don’t have time to read,’” she added. “The best way to help me is to just be here for me. My friends and family were.”
Peart’s blog also created a path out of loneliness.
“I took everyone along on the journey,” she said. “I wanted folks to know exactly what I was going through. I wanted them to see behind the scenes.”
The seven-year blog bloomed into an exchange of vulnerabilities, research and unconventional conclusions based on the personal experiences of thousands of who had cancer.
Perhaps the most unconventional conclusion that Peart posted on her blog, and others echoed, is her belief that her cancer started with a root canal that went horribly awry. (http://www.anncredible.com/2015/02/do-root-canals-cause-breast-cancer.html)
“The quick explanation is that I had a root canal that went bad in 2010,” Peart explained. “I started to get headaches that would bring me to my knees, tinnitus in my ear and other symptoms that assured me something serious was out of whack.”
“The day the tooth was removed I felt better,” she added. “There was an infection against my jawbone that had been there a long time. A lot had been happening. I worked with biological dentists and did endless hours of research to connect the dots. Any dentist will probably say root canals don’t connect to cancer, but I know what I believe.”
Another “Anncredible” post that struck a chord with followers was Peart’s discussion about dating with cancer.
“I put my bald self up on Bumble and joked that I wasn’t a long-term commitment,” she said.
She received meaningful messages of hope and support – “not the typical dating responses” – she said. “It turned out to be a social experiment that was quite comforting.”
It was really comforting when she met Davie, her current partner – and “The One.”
“He was, and still is, so supportive,” Peart said. “He often says he is sorry that I went through so much of my cancer journey alone. He would have been there. He gets it because he cared for a parent who had cancer.”
In March of 2014, after seven rounds of chemotherapy, four kinds of chemotherapy, six surgeries and 12 infusions, Peart made a decision that proved to be a turning point in her cancer journey.
She said no thanks to her doctor’s recommendation that she roll through radiation treatments and then take hormone-blocking pills for the rest of her life.
She chose to dedicate all of her time and energy into learning about what causes cancer and about how to build her body up so cancer would never come back. She leapt from conventional medicine to holistic, functional medicine.
Drawing from her own journey, research and partnerships with others, Peart spent years managing a functional medicine clinic that included a nutraceutical line of supplements and a commitment to help others reverse chronic illness with a holistic approach.
Of course, she has a blog for this chapter in her life, too: https://connectinghealthydots.blogspot.com/
Peart remains intrigued by concepts such as fasting during chemotherapy.
“Everything is still going through clinical trials, but the concept is that if you fast for three or four days before chemo and up to two days after, our regular cells shut down in starvation mode,” she explained. “So cancer cells are already stressed. With mice, when you added chemo, [to the starved cells] twice as many cells were killed and the mice had longer life spans.”
Today, at age 50, Ann Peart directs business development for Waterstone on Augusta, an assisted living facility in Greenville – and she’s still in remission.
She, her children and Davie know the importance of giving back and that “things we don’t plan will always happen,” she said. “When you know there are bigger things like cancer that can happen, your feathers get less ruffled over little things.”
“We also know to love while we can because nothing is permanent,” she added. “We love while we can big time.”
Herring Earns Her “A” for Cancer
October 8, 2021
As associate director of development for The American Cancer Society, Sundi Herring was no stranger to breast cancer when she received her own diagnosis on April Fool’s Day last year. She was 44. She had helped her mother and her grandmother battle breast cancer in their 60s.
“I’ve got this. My mom had this. I’m good,” Herring remembers thinking. “In fact, I’m going to get an ‘A’ in cancer.”
COVID had already flipped the script on life as everyone knew it. Herring was balancing work and home-schooling her children, Maisie and James.
“I knew there was an 87% decline in cancer screenings once COVID hit,” Herring said. “I was due for a mammogram. I knew early detection saves lives, so I remained determined to get screened as soon as possible.”
From screening, to MRIs, to biopsies and then the diagnosis, Herring has walked cancer’s challenging walk, which inspired her to become more vocal and to reach out to more people with the lessons she learned.
“There are great people who help you navigate everything, but they are so inundated, I knew I needed to take the lead for my own journey,” Herring said. “When possible, others should, too.”
She credited Three p’s with her success: partners, patience and persistence.
Her earliest partnerships formed through social media and when she dialed the 800 number for the American Cancer Society.
“It was 2 a.m. I was struggling with the decision to have a unilateral or a bilateral mastectomy; I wanted answers and company,” Herring recalled. “They say it’s a 24/7 hotline and, sure enough, someone picked up. And we talked and talked.”
An oncologist nurse called her back the next day.
“For the first time I felt heard. I got affirmation for my decisions,” Herring said. “I felt like a grownup had entered the room. The cancer society community and communities I joined through social media rallied me and carried me through my darkest days.”
The decision-making stage was the toughest for Herring. She weathered the wait times: waiting to get appointments with doctors, waiting for results, waiting to see if treatments were working.
But making actual decisions about the surgeries and treatments crippled her.
“I was emotionally and physically exhausted. I wasn’t sleeping,” Herring explained. “I couldn’t make decisions when I really needed to.”
“Once I knew what the surgery would be and I had the surgery date, the heaviness went away,” she added. “I felt sure about the surgeon and the plastic surgery. I was ready. The swirling indecision is really the hardest part.”
Metaphors and music were often lifelines for Herring. During MRIs and chemo treatments, she’d listen to songs by Pink.
“The ones when she is mad were the best,” Herring joked. “And I’d listen to Insight Timer – a meditation app – while I was cocooning.”
She did not listen to the news.
As Herring grappled to understand doctor speak, rich comparisons translated for her and helped her laugh along the way.
She recalled this one: “With the early diagnosis, before additional tests revealed the specifics of my cancer, I remember a doctor telling me, ‘We just delivered a pizza to your door. We think that it is pepperoni, but we won’t know until another MRI and some genetic testing. Right now, we know it smells like pizza.”
“A simple metaphor made things seem easier,” she added.
Anyone who is wondering about what it’s like to have cancer will learn quickly that it is a bumpy ride with moments of unimaginable exhaustion.
“But there are lots of tiny victories,” Herring promised.
“I’m too groggy to open a pill bottle, but a neighbor helps me – victory.”
“I walked halfway around the block – victory.”
“I came downstairs and sat at the table – victory.”
“I didn’t sleep in the recliner – victory.”
A big victory for Herring was when she got to reclaim her bedroom after months of it looking like a pharmacy. She packed up the pill bottles and all the sickness-related paraphernalia and put the decorations back up.
“Those little achievements … you have to notice them and be thankful for them,” she said.
Herring remains an icon for raising awareness and funding for cancer-related needs. Hours after this interview, she was bound for a donor dinner. The next day she hosted a talk.
A pink polo shirt, pink socks and lemonade swag for “Squeeze Out Cancer” fill her desk. Her work area reflects Herring’s life before cancer and now, months after her clean pathology report on June 2.
“I’m making more time for magic, for serendipity, for wackiness,” she said. “I always enjoyed wackiness, but only when I had time. Now I make time for it because it makes me feel alive.”
‘“Nothing focuses the mind like approaching scaffold.’ I think Mark Twain said something like that. It’s true,” Herring said. “I feel more focused than I’ve ever felt – like I’m swimming with the flow at the right place at the time. I hope it lasts.”